Full Time
He eats puree by mouth so meal prep and feeding (its easy). He has a gtube so giving a couple of meds and water flush is required (it's easy). changing pamper every 2 hours. He weighs about 60 pounds and lifting and moving him is required. Other than that his day it is typical child stuff - educational stuff, watching Tv and chilling out, sometimes coordinating with his home health therapy, and some physical work with him like stretching and massaging. We try to get out frequently also to do fun stuff - parks, museum, zoo, etc. Mask must be worn around him. We have to take all necessary precautions due to his weaker immune system. We are a happy, loving, fun, supportive, inclusive home.
